Tuesdays with Ev

Today we didn't have to go to clinic until noon. Ev received one IV chemo med and will continue to get the same at home for the next three days. Ben went with us this time because the visit was supposed to be short...and in fact, it was. It was great to have a short day at the hospital.

Next week we will be there three days, and the week after...three days. Ev will receive a shot with an alternate drug to PEG (the one that he had a severe allergic reaction to). It's easier and less traumatic for kids to receive PEG through their port, but that isn't possible for Ev and 10 percent of the other cancer patients at Riley. So, one shot three times a week for two weeks. Ev is really not gonna want to go to Riley...but, maybe he will surprise me and it won't be so bad. It's possible, but not likely.

In three weeks, we will be into the interim maintenance phase...I eagerly await the sentence. Will it be long with fewer visits? Or, will it be short with more visits? In truth, I don't care...each day that goes by is one more day closer to kicking this thing in the tail.