Wednesday, July 9, 2014

Why would I ever run?

I am pretty sure that I won't say "never" again. It seems that every time I say it I end up doing whatever I was adverse to, or even though it might be out of my control...it happens anyway. So what is it this time? Running.

I joined Team in Training (TNT, www.teamintraining.org) through the Leukemia and Lymphoma Society (www.lls.org) and starting in August I will begin to train. I can sign up for a 3 or 5 mile run (the longest distance promises to be more scenic!?). Though I won't raise funds for every run or walk that I participate in, I am for this one.

Please visit my page and donate if you can. I know there are a million good causes to put money towards, so if you don't have one or your pockets are deep, pick this one...

Click here to help!

I also welcome any running tips...
Thanks!

Tuesday, July 8, 2014

No preschool this year

My plan was to introduce Ev to the preschool world this fall, but after signing him up and letting the whole thing soak in...well, I can't do it. I just can't compromise the integrity of his treatment because I want a better story for him. "I" want Ev to follow through with the plans I had for him and I know he would love preschool, but to what avail? So, I plan to keep him home while Ben goes off to kindergarten and see what the year brings.

Our clinic visit and talk with the doc last Tuesday was inconclusive as to why Ev gets sick every other Tuesday. But, they checked his liver to make sure there wasn't too much toxicity there. The levels were elevated from the last time he was checked, but not enough to stop or reduce any chemo. Also, his counts were high again (ANC 6000s). His counts should not be this high during the maintenance phase, and it hasn't been during any phase we've gone through thus far. So, the dosage of his oral chemo meds were increased. Great! (total sarcasm). A.K.A....toxicity levels were up when he was on a lower dosage, but we have to up the dosages in order to bring done his ANC.

To me, this is a sign of welcoming in the craziness that for a moment we were without. There is a reason people say "fighting cancer" or "battling cancer"...its common knowledge its not a one and done deal (to all of our dismay).

On a high note...Ev was "scheduled" to wake up sick this morning and he didn't. I'm ok with being clueless for now...when it means he is doing better.