Raising money and awareness

I have a few points of interest to share...

"The Leukemia & Lymphoma Society (LLS) is a proud supporter of Ken Burns Presents CANCER: THE EMPEROR OF ALL MALADIES, a film by Barak Goodman. Based on Siddhartha Mukherjee’s 2010 Pulitzer Prize‐winning book, “The Emperor of All Maladies: A Biography of Cancer,” it’s a vivid account of cancer's grim past and the promising future of cures. LLS-funded research has contributed to breakthroughs that have helped tame some of the most lethal blood cancers, and helped get to this moment of extraordinary progress in cancer research and treatment.

The three‐part, six‐hour documentary series will air on PBS on March 30, 31, and April 1st at 9PM local time. Watch the film. Witness the impact LLS has had on the fight against cancer. We all have more work to do. Join us."

To see the trailer go to:

http://www.lls.org/emperor/

And...

I will be running with Moms in Training again for a race in April...a race in which I will be fundraising for The Leukemia & Lymphoma Society. I will share the links and details as I get them. 

And...

sharing some love with us and others...

"Less than one month, guys! Let's get the word out and raise some money for Pediatric Cancer Research! I'm going to "Brave the Shave" in honor of Everett - so donate what you can, every little bit helps!" -Brianne

Help the cause, visit:

https://www.stbaldricks.org/participants/mypage/740843/2015

Finding happiness

I wasn't going to accept another sad day at clinic, so I asked Ev before we went how we could bring some happiness into our day. He wanted to go to a store and pick out a toy, so we did. Mr. Potato Head Batman...the least intimidating Batman he owns.

Once we got to Riley he got more toys in honor of his 4th birthday! ...some coloring books and a much stronger Batman, to which he refers to as Ghost Batman (he loves Halloween and Batman was dressed in all white so naturally this makes sense).

I wish I could say that the entirety of the visit was without any discomfort, but they never are...seeing him poked with a needle so large and having to hold him down...with the help of other nurses, it hurts me to see and do every time (a moment in which I must detach from my emotions). I wish I knew what it felt like to have that needle pierce my skin...I wish I could understand the realities of all his physical and emotional pain. I wish it was me instead of him. 

But, it was a good visit. He only had one chemo med and the visit was short. And he was a trooper!

I am his chameleon...I see him strong and I am strong, I see him in pain and I am in pain. I soaked up the strength and joy he managed to show that visit. Thank God not everyday is a bad one...and thank God he can be my chameleon too.