Our lives had become an after school special on why you should never take steroids. He had "roid rage" and it was making all of us stressed and weary.
Now, Ben has his brother to play with again and Ev is actually happy to be playing with him. They played for hours together this morning. It was like living a dream that I forgot was a possible reality.
I'm so glad that Ev will not be on that drug again in the foreseeable future.
We have 3 weeks and 3 days left of the delayed intensification phase and then we will enter into another realm that will change the pace of our lives again. Going to Riley once a month is hardly a believable thought for me. Last month we were there 7 days and prior to that we were living there for 10 days in a months time.
I am excited about the future, knowing that some of our hardest days are behind us. I packed up Christmas decorations today, the sun is shinning and I am ready for the New Year.
We did have a good Christmas. We were able to be at home and be with family...that was my goal and God willing, it happened. The boys enjoyed being little elves passing out presents and being snuck extra sweets. Yeah, I noticed those Snowmen Pez guys being refilled Nana. But, no worries, I too was one who snuck extra treats to them.
Christmas Eve...a prime example of Ev's mood swings. He refused to even look at me, he was mad that his picture was being taken (the real Ev would have made a silly face or danced for us). But that Captain America shield on his arm was not forced...he wore that for two days. Dexamethasone has nothing on Captain America!
This SpongeBob pillow is an example of many charitable donations given to Riley kids throughout the year. Toys seem to be so minor when faced with cancer, but I guarantee you they are not.
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