We have been home since Wednesday afternoon and it has been great. Ev didn't have a PICC line, an IV, or port for about 48 hours. Unhooked with no meds (other than pain meds as needed). He was a free man and feeling great. He has had two baths in two days at least an hour long each. It was bliss to see him enjoying what he did before.
Yesterday, we had a scheduled surgery appointment for a port. A port is the ideal method for receiving chemo because Ev can still function like a toddler and there is less chance of infection. The port is under his skin with an access point above his ribs in his chest. The port delivers meds close to his heart so that it can be pumped easily throughout his body. Also, chemo meds are too strong for some of our veins so the meds have to travel in a bigger, stronger vein.
It sounds horrible, doesn't it? But, to continue with a PICC line is not practical or safe for the long haul and we sure as hell aren't going to succumb to Leukemia...so a port sounds like a great plan. (In the next week we will know how the battle against Ev's ALL is shaking out and we will know the next round of therapy.)
The door to childhood has been opened and behind that door we have rediscovered play-doh, finger paints and water fun. Ev may not get to play in the dirt as he did, but right now he doesn't seem to care. He feels great and therefore we could not be happier.
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