I can see the goal and it's almost in reach! It has been three weeks since we were last at Riley and if we make it 8 more days then we will have achieved another goal...no unscheduled visits, or admittances for a month.
When I first heard that we would only be at the hospital once a month it was such a relief to know we would get a break and that we would be another step closer to moving on with our lives, for Ev to be healed. Then, when I saw the list of meds that he would continually be taking, I pictured these monthly visits to be a mirage. I figured his counts would be so low that we would find ourselves with a fever and back at the hospital. To me great joy, we have stayed away and it feels great.
Ev has been doing well and is unfazed physically and emotionally by the drugs he is taking (there is no extra drugs beyond the basic to combat side effects). He acts healthy, playing with his brother, fighting with his brother, tackling anyone in sight, dancing to music, practicing karate kicks, eating as much as a grown adult and bonking his head a million times during the course of a day. We are blessed.
Ben just kicked a 24hr. stomach bug. He was puking and had a temp of 102. None of us like seeing our kids in this shape, it bites. But, when he woke this morning he was good and so far Ev has not caught the bug. How is that even possible?! We'll take the blessings as they come.
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